Tag Archives: treatment options

Encounter with Dr Susan Love

Not me, of course, but a friend in New York went along to an Interview, Q & A, buffet event at the last minute a couple of days go and got to ask questions at the mic and speak to Dr Love during the evening. As a fellow METAvivor her questions were directed about the …

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Feeling better, getting worse

Things have gone more than a bit pear-shaped of late, on the cancer front at least. What were just small possible liver mets on a 22 Jan 2014 scan have rather taken off and are now causing my platelet count to drop, as well as my liver function. Last week I was switched from Letrozole …

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Awareness – post-diagnosis?

I have recently had a major progression of my Metastatic Breast Cancer into my liver. I have been thinking that I wonder if awareness actually works because doctors, and even oncologists seem to be so resistant to patients recognising symptoms. There have been some high profile cases of young women developing cervical cancer about the …

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1 in 5 cancer trials fail to complete

http://www.cancernetwork.com/asco-2014-genitourinary-cancers-symposium/one-fifth-cancer-clinical-trials-fail-complete?GUID=A1E7C055-6042-44DA-8269-BFF034C741FF&rememberme=1&ts=07022014 I came across this in a newsletter I subscribe to by e-mail. It is staggering that 20% of cancer clinical trials fail to complete, and only 1% of those is due to the efficacy of the drug or some other adverse event. When I think how difficult it seems to be to get a …

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I wish I had breast cancer – advert by Pancreatic Cancer Action in the UK

Evidently an ad campaign has been running on UK commercial TV which has a pancreatic cancer patient saying she wished she had breast cancer. http://www.youtube.com/watch?v=IDU1XEAWkxE&feature=youtu.be I do understand the message, and I do understand the lack of funding for pancreatic cancer research but there are also frustrations for those of us with Metastatic Breast Cancer …

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When Pink works

When Pink does what we all want it to do it is great, but too often it is diluted in the wash by companies that see profit first and foremost. Pink doesn’t need to be washed, Pink can be perfect just as it is. http://blog.dslrf.org/?p=1774 What is needed is for the confidence in Pink to …

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Contributing to breast cancer research

It is now over six years ago that part of my body was cut off because of cancer. A part of that breast still exists and may be helping researchers get a better understanding of how breast cancer works. I donated the tumour to a tissue bank which was being set up centrally in the …

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Generic Drugs – good choice, or bad?

I was interested to read this article from the New York Times this morning about the way that generic medication is seen in the US. In the UK it has long been the case that doctors must prescribe generic meds unless specifically stated on the prescription. This has saved massive amounts of money which has …

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Inflammatory?

What do you think of when you see that word? Some would think of a seriously annoyed person telling others something they don’t want to hear – inflammatory speech, anger. Some would think of inflammation of their body from arthritis or a pulled muscle, a mouth sore … – inflammation of the body. Some would …

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How do we get Metastatic Breast Cancer to be the focus?

Somehow I found my way to looking at some videos about the 2020 Breast Cancer Deadline campaign (not sure I am so keen on the dead part of it myself), and I noticed that there is a video supporting it from Bill Clinton, whose mother died of breast cancer. http://youtu.be/8aKHAcrZhl4 I mentioned, a bit tongue …

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Health Communications and Health Advocacy

With deep understanding, health communicators can engage and inspire change, whether in individuals or in society as a whole.

MBCNbuzz

...the proactive voice of the metastatic breast cancer community...

The Sarcastic Boob

Determined to Manage Breast Cancer with the Same Level of Sarcasm with which I Manage Everything Else

Telling Knots

About 30% of people diagnosed with breast cancer at any stage will develop distal metastasis. I am one.

The Riverford Blog

News from the farm