Tag Archives: metastatic breast cancer

Encounter with Dr Susan Love

Not me, of course, but a friend in New York went along to an Interview, Q & A, buffet event at the last minute a couple of days go and got to ask questions at the mic and speak to Dr Love during the evening. As a fellow METAvivor her questions were directed about the …

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Feeling better, getting worse

Things have gone more than a bit pear-shaped of late, on the cancer front at least. What were just small possible liver mets on a 22 Jan 2014 scan have rather taken off and are now causing my platelet count to drop, as well as my liver function. Last week I was switched from Letrozole …

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Awareness – post-diagnosis?

I have recently had a major progression of my Metastatic Breast Cancer into my liver. I have been thinking that I wonder if awareness actually works because doctors, and even oncologists seem to be so resistant to patients recognising symptoms. There have been some high profile cases of young women developing cervical cancer about the …

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Page 3 and Coppafeel

In the UK there is a newspaper called The Sun which has printed photos of topless girls on its Page 3 for as long as I can remember. It is the kind of paper that many buy it because of its ‘excellent sports coverage’. It is rather sad that in 2014 a newspaper is still …

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There is something missing … the “Inconvenient Truth” of breast cancer

As someone who has lived with Stage IV Metastatic Breast Cancer (MBC) for over 6 years I have long noticed that there is something missing; and we are not talking about my left boob here. When I was diagnosed with MBC I took a brief look at the statistics. Didn’t dwell there long because I …

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Letter re: Komen and Kohl’s campaign imagery

Dr. Judith A. Salerno, c/o Komen’s HQ, 5005 LBJ Freeway, Suite 250, Dallas, TX 75244. Dear Dr Salerno, I am writing to register my disappointment that Komen, in their partnership with Kohl’s department stores, has chosen to use the imagery of an elephant for their campaign, in what would appear to be a clear rip-off …

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1 in 5 cancer trials fail to complete

http://www.cancernetwork.com/asco-2014-genitourinary-cancers-symposium/one-fifth-cancer-clinical-trials-fail-complete?GUID=A1E7C055-6042-44DA-8269-BFF034C741FF&rememberme=1&ts=07022014 I came across this in a newsletter I subscribe to by e-mail. It is staggering that 20% of cancer clinical trials fail to complete, and only 1% of those is due to the efficacy of the drug or some other adverse event. When I think how difficult it seems to be to get a …

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I wish I had breast cancer – advert by Pancreatic Cancer Action in the UK

Evidently an ad campaign has been running on UK commercial TV which has a pancreatic cancer patient saying she wished she had breast cancer. http://www.youtube.com/watch?v=IDU1XEAWkxE&feature=youtu.be I do understand the message, and I do understand the lack of funding for pancreatic cancer research but there are also frustrations for those of us with Metastatic Breast Cancer …

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Cancer support = survivor???

Why is cancer support only about being a survivor? I recently contacted a local cancer trust to enquire about retreats that they now run not far from where I live. Regrettably I do not feel that I would be welcome at the retreat because the focus will be life ‘after’ cancer because they expect those …

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When Pink works

When Pink does what we all want it to do it is great, but too often it is diluted in the wash by companies that see profit first and foremost. Pink doesn’t need to be washed, Pink can be perfect just as it is. http://blog.dslrf.org/?p=1774 What is needed is for the confidence in Pink to …

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Health Communications and Health Advocacy

With deep understanding, health communicators can engage and inspire change, whether in individuals or in society as a whole.

MBCNbuzz

...the proactive voice of the metastatic breast cancer community...

The Sarcastic Boob

Determined to Manage Breast Cancer with the Same Level of Sarcasm with which I Manage Everything Else

Telling Knots

About 30% of people diagnosed with breast cancer at any stage will develop distal metastasis. I am one.

The Riverford Blog

News from the farm