Tag Archives: family

Personalised Medicine

The promise of a treatment regime which is tailored to your exact cancer genotype and allowing the patient to have the drugs that will work best for them and their cancer type has been on the horizon for, well for those of us with Metastatic Cancer, almost a life time. It is always just around …

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Finally! Human genes can not be patented.

The United States Supreme Court has ruled that companies can not patent human genes and stop others researching specific genes or developing tests. http://bcaction.org/2013/06/13/victory-supreme-court-outlaws-human-gene-patents/ Why on earth was the patenting of human genes permitted? How could one company be allowed to ‘own’ a human gene and dictate what tests and research could be done with …

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Metastatic Breast Cancer … culture?

I have just watched a TedMed video on youtube and it started me thinking; you may have heard the noise of the rusty cogs moving. Andrew Solomon came to realise that there was a vibrant ‘horizontal’ culture in the lives of those who, for instance, are deaf or are dwarves just as there is a …

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Patchwork – a metaphor for life with Metastatic Cancer?

Just in case you haven’t noticed I have become somewhat obsessed with patchwork quilts recently.  I have spent loadsa money on fabrics and even bought a new sewing machine, though that was more of a necessity as my old one had stopped working and I actually can’t find it any more.  Maybe it got put …

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So many with MBC think that no one cares

“The first time round I never had to cook a meal and everyone came to help”.  “The first time round the hospital couldn’t do enough to support me, but this time it seems to be ‘here is your next appointment and there is the door’”.  “The first time round” is of course having Early Stage …

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TW3 – an amazing week!

In the 60’s there was a TV programme on the BBC called ‘That Was The Week That Was’, or TW3.  I have to say that this has been an amazing week with one new addition to the family just two days before another member of the family became a legal adult.  Of course I use …

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The Young Ones

There is a misconception that Breast Cancer is a disease of older women.  How wrong can you be?  Whilst the majority of those who develop breast cancer will be over 60 there are many who are in their 20’s, 30’s, 40’s and 50’s who also have the disease and who die from the disease.  There …

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Lost Inspiration

I belong to a forum called Inspire, and I call the members the Inspirettes.  Sadly we lose members on a frequent basis, and when I was looking back I began to realise that of those replying to a certain post I am the only one who is still alive.  Of course there are even more members …

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Advocacy for an individual

I was trying to find out what happened to some of my friends on Inspire who I haven’t heard of for a while.  This can be difficult as a members use screen names and don’t always give many details to be able to identify them, and I have just realised that I don’t necessarily ask …

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Understanding myself and living with metastatic breast cancer

There have been two programmes on the BBC over the last couple of weeks which have really helped me to put together some of the jigsaw pieces about my self and my father, as well as helping me understand why I feel as though I can live with metastatic breast cancer although it will, in all probability, …

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Health Communications and Health Advocacy

With deep understanding, health communicators can engage and inspire change, whether in individuals or in society as a whole.

MBCNbuzz

...the proactive voice of the metastatic breast cancer community...

The Sarcastic Boob

Determined to Manage Breast Cancer with the Same Level of Sarcasm with which I Manage Everything Else

Telling Knots

About 30% of people diagnosed with breast cancer at any stage will develop distal metastasis. I am one.

The Riverford Blog

News from the farm