Tag Archives: advocacy

Encounter with Dr Susan Love

Not me, of course, but a friend in New York went along to an Interview, Q & A, buffet event at the last minute a couple of days go and got to ask questions at the mic and speak to Dr Love during the evening. As a fellow METAvivor her questions were directed about the …

Continue reading

The original creator of the BC awareness ribbon has died

If you have watched the film Pink Ribbons Inc you will be aware of the story of Charlotte Haley who designed the first breast cancer awareness ribbon, which was a salmon or peach pink shade. When she was contacted by Evelyn Lauder of Estee Lauder who wanted to use it she realised that it had …

Continue reading

There is something missing … the “Inconvenient Truth” of breast cancer

As someone who has lived with Stage IV Metastatic Breast Cancer (MBC) for over 6 years I have long noticed that there is something missing; and we are not talking about my left boob here. When I was diagnosed with MBC I took a brief look at the statistics. Didn’t dwell there long because I …

Continue reading

When Pink works

When Pink does what we all want it to do it is great, but too often it is diluted in the wash by companies that see profit first and foremost. Pink doesn’t need to be washed, Pink can be perfect just as it is. http://blog.dslrf.org/?p=1774 What is needed is for the confidence in Pink to …

Continue reading

Internet, schminternet

I think my internet connect has decided to come back. For the last couple of days it has been disappearing constantly and has basically been driving me mad. I have had to step away from the computer a few times so we didn’t gang up on the internet connections modem thingy and give it what …

Continue reading

Moving on …

October/Pinktober is over for another year. Phew. I made it through with a bit of my sanity intact and the potential to get the rest of it back during November as the veil of the Magic Month is drawn back to leave us with 11 months of the truth of what breast cancer is, and …

Continue reading

The New York Times

I saw a request for breast cancer stories in the on-line version of the New York Times, so I submitted my story, never thinking that it would be selected. But there I am … with a photo of myself with my great niece Sophie taken in August this year. Victoria Ford from Lymington, Hampshire, UK. …

Continue reading

4 April 2014 Stage IV Breast Cancer Day in the UK

Not sure I can get the ball rolling on this, but I thought this video might help, and the facebook page. https://www.facebook.com/groups/1420485158172456/

Continue reading

Seeing the world through rose coloured glasses

Isn’t this almost the ultimate definition of the Pink Ribbon movement? A world tinted pink. The rosy glow of survivorship and that all will be well. Pink is actually my favourite colour which somehow makes things all the worse when I think how this colour has been used and abused. What we really need in …

Continue reading

What would I say to the Media … about Komen

Susan G. Komen For The Cure has suggested that those of us with Metastatic Breast Cancer (aka Stage IV, Advanced or Secondary Breast Cancer) contact our local newspapers and media outlets to get them to feature awareness of Metastatic Breast Cancer. So here are a few facts that you might like to highlight. • Metastatic …

Continue reading

Health Communications and Health Advocacy

With deep understanding, health communicators can engage and inspire change, whether in individuals or in society as a whole.


...the proactive voice of the metastatic breast cancer community...

The Sarcastic Boob

Determined to Manage Breast Cancer with the Same Level of Sarcasm with which I Manage Everything Else

Telling Knots

About 30% of people diagnosed with breast cancer at any stage will develop distal metastasis. I am one.

The Riverford Blog

News from the farm