Category Archives: Uncategorized

Encounter with Dr Susan Love

Not me, of course, but a friend in New York went along to an Interview, Q & A, buffet event at the last minute a couple of days go and got to ask questions at the mic and speak to Dr Love during the evening. As a fellow METAvivor her questions were directed about the …

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Feeling better, getting worse

Things have gone more than a bit pear-shaped of late, on the cancer front at least. What were just small possible liver mets on a 22 Jan 2014 scan have rather taken off and are now causing my platelet count to drop, as well as my liver function. Last week I was switched from Letrozole …

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Awareness – post-diagnosis?

I have recently had a major progression of my Metastatic Breast Cancer into my liver. I have been thinking that I wonder if awareness actually works because doctors, and even oncologists seem to be so resistant to patients recognising symptoms. There have been some high profile cases of young women developing cervical cancer about the …

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The original creator of the BC awareness ribbon has died

If you have watched the film Pink Ribbons Inc you will be aware of the story of Charlotte Haley who designed the first breast cancer awareness ribbon, which was a salmon or peach pink shade. When she was contacted by Evelyn Lauder of Estee Lauder who wanted to use it she realised that it had …

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Page 3 and Coppafeel

In the UK there is a newspaper called The Sun which has printed photos of topless girls on its Page 3 for as long as I can remember. It is the kind of paper that many buy it because of its ‘excellent sports coverage’. It is rather sad that in 2014 a newspaper is still …

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One Must Occupy It

Originally posted on The Sarcastic Boob:
? As a result of social media pressure, Kohl’s has finally reached out to METAvivor.  As they open a dialog we must continue to apply the pressure.  Continue tweeting because all of your tweets have an extensive reach.  Every tweet brings both pressure to Kohls and Komen, and educates. …

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Is Advocacy worth the effort?

The Pink Ribbon has steamrollered over breast cancer, and while its message might be reassuring and safe it is not the real message. The real message of breast cancer awareness is that Metastatic Breast Cancer still kills about 450,000 people globally each year. The real message is that even if the cancer is caught at …

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There is something missing … the “Inconvenient Truth” of breast cancer

As someone who has lived with Stage IV Metastatic Breast Cancer (MBC) for over 6 years I have long noticed that there is something missing; and we are not talking about my left boob here. When I was diagnosed with MBC I took a brief look at the statistics. Didn’t dwell there long because I …

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Letter re: Komen and Kohl’s campaign imagery

Dr. Judith A. Salerno, c/o Komen’s HQ, 5005 LBJ Freeway, Suite 250, Dallas, TX 75244. Dear Dr Salerno, I am writing to register my disappointment that Komen, in their partnership with Kohl’s department stores, has chosen to use the imagery of an elephant for their campaign, in what would appear to be a clear rip-off …

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Straighten up that Tiara and fly right, farewell Shelli

This is a piece I wrote In Memoriam on Inspire about my cyber friend. Missing her already. Shelli, aka TiaraGurl died on 13 or 14 February 2014 (It is difficult to really tell with the time difference, I am in the UK). A wonderful and feisty woman who was blessed with a beautiful singing voice, …

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Health Communications and Health Advocacy

With deep understanding, health communicators can engage and inspire change, whether in individuals or in society as a whole.

MBCNbuzz

...the proactive voice of the metastatic breast cancer community...

The Sarcastic Boob

Determined to Manage Breast Cancer with the Same Level of Sarcasm with which I Manage Everything Else

Telling Knots

About 30% of people diagnosed with breast cancer at any stage will develop distal metastasis. I am one.

The Riverford Blog

News from the farm