Monthly Archives: June, 2013

Acceptance is the new Pink

Or it should be. Right now, for me and in relation to breast cancer, Pink is about breast cancer survivorship and a community that I don’t feel a part of. Pink also happens to be my favourite colour, and the pretty pastel shades that to me are warm, comforting and embracing. This room has pink …

Continue reading

Here and Now ?

This came to my attention today, and who would have guessed that 81% of UK respondents to a Novartis Oncology commissioned survey are aware that early breast cancer can be treated to the patient is free of the disease, but 77% were unsure of did not know that advanced breast cencer cannot be treated so …

Continue reading

Treatment moved on to Denosumab (AKA Xgeva)

I had my first dose of Denosumab (AKA Xgeva) early in May and everything seemed to be fine. I can’t tell you what a relief it is not to have to have a cannula put in every 4 weeks and then hooked up for the Zoledronic Acid (AKA Zometa, Zoledronate). Now instead of spending an …

Continue reading

Finally! Human genes can not be patented.

The United States Supreme Court has ruled that companies can not patent human genes and stop others researching specific genes or developing tests. http://bcaction.org/2013/06/13/victory-supreme-court-outlaws-human-gene-patents/ Why on earth was the patenting of human genes permitted? How could one company be allowed to ‘own’ a human gene and dictate what tests and research could be done with …

Continue reading

Choosing your treatments

I have now lived with Metastatic Breast Cancer for 5 years and 5 months. The hospital initially told me that I had six months, possibly a year and that my only treatment would be palliative and to try and slow the beast’s path of destruction. So here I am 65 months later. Each of us …

Continue reading

Health Communications and Health Advocacy

With deep understanding, health communicators can engage and inspire change, whether in individuals or in society as a whole.

MBCNbuzz

...the proactive voice of the metastatic breast cancer community...

The Sarcastic Boob

Determined to Manage Breast Cancer with the Same Level of Sarcasm with which I Manage Everything Else

Telling Knots

About 30% of people diagnosed with breast cancer at any stage will develop distal metastasis. I am one.

The Riverford Blog

News from the farm