Monthly Archives: February, 2013

Going over the top … of the quilt, that is.

So on Tuesday I had a marathon quilt block making session and by noon on Wednesday, less that 24 hours later I ended up having made up 16 blocks.  I have to make it clear that this is only the front of the block, and that I had already cut out the pieces so all I …

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Reinventing the wheel

Why do we have to keep reinventing the wheel?  This occurred to me when I read a post by someone on Inspire about the exploitation of the Pink Ribbon in all it’s forms – so why do we need to keep reinventing the wheel?  Because the biggest ‘manufacturers’ of the wheel keep ignoring that not all …

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What am I giving up for Lent? Why cancer of course

I was wondering what to give up for Lent.  Ok, so it has started already but I was inspired by a post on a forum of the perfect thing to give up for Lent.  Cancer. I could have chosen dark chocolate (ouch), alcohol (but I don’t drink)*, annoying people (it is the only thing I …

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Leadership and advocacy

A newsletter from breast cancer deadline 2020 has popped into my inbox and I thought that I would share what looks like an amazing event.  Leadership is what is needed in breast cancer advocacy.  I don’t know if anyone can go, but if you can do tell me what it was like.  It takes place …

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The POWER of words

A friend recently wrote how the oncologist saying her cancer was getting ‘worse’ had a much greater impact on her than the expression that the cancer was ‘progressing’.  Cancer can make you extraordinarily sensitive to every nuisance of what the oncologist says to you.  For instance a couple of weeks ago I saw my oncologist for …

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Tomorrow is another day, and another treatment

Time: 10am, Wednesday 6th February 2013. Place: Oakhaven Hospice, Lymington, Hampshire Treatment: intravenous Zoledronic Acid, aka Zometa, aka Zoledronate. Duration: usually about 45 mins in all including having a cannula inserted and removed, saline before and after the 15 mins it takes to transfuse the medication. Preparation: drink LOTS of water After care: drink LOTS of water Side …

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Not sure what to say …

As part of the Lost Inspiration Quilt project I am doing some blocks for some friends that I have lost.  I have now got to the point where I need to think what I want to say on the reverse panel. This is the first panel as I had made it up earlier, as they …

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Starting a web site

I have been thinking about starting an Inspired Metastatic Breast Cancer Advocacy website.  The only problem is that I know bugger-all about websites and I don’t really have the finances to start anything too grand – or at least to splash out on something that I have no idea how it works.  So far the …

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3 March 2013 – any idea what is going on?

The Triple Negative Breast Cancer Foundation have declared this day as the inaugural Triple Negative Breast Cancer (TNBC) Day.  Congratulations to them for having the nerve to break away from Pinktober and have 3/3/2013 as Triple Negative day.  I have come to the conclusion that there is no point in fighting for attending during Pinktober (October …

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Determined to Manage Breast Cancer with the Same Level of Sarcasm with which I Manage Everything Else

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About 30% of people diagnosed with breast cancer at any stage will develop distal metastasis. I am one.

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