Open letter to Dr Snyderman
Stage IV metastatic breast cancer (MBC), women and men alike, remember Julie A. Eisele (1963 – 2012) who advocated for MBC awareness via political parties, the media, Susan G Komen and other organizations. This is a mission statement to ask to be SEEN and HEARD; for the public to look beyond the pink ribbons of survivorship, and realise that research for those with incurable metastatic breast cancer is underfunded. We feel as though we are ignored by the ‘survivors’, the media and breast cancer charities who are the very people who should be supporting us.
Dr Snyderman, you were one of those that Julie reached out to in the hope of starting a dialogue and to get some media attention of the problems that we face within the breast cancer community. Julie contacted your office in mid May but she died on 8th July 2012 at the age of 49 having been diagnosed with breast cancer 9 years ago and lived with MBC for 3 years. Her research showed that the average survival time from a mets diagnosis was 2 – 3 years, which proved to be so for Julie.
Less that 2% of breast cancer research funding is devoted to MBC, although we make up about 30% of the breast cancer community. If Julie had the same breadth of treatment options that are available to early stage breast cancer ‘survivors’ she may still be with us, playing with her children and advocating for the rights of her Mets Sister who, like her, are dying to make a difference.
The members of the newly formed group “Inspired Metastatic Breast Cancer Advocacy” invite you, Dr Snyderman, to join our discussion so we can fulfill Julie’s aspiration of a better understanding of this disease. We respectfully ask that you help us to make this dream a reality because Julie’s voice and message still echo in our hearts and gives us hope for a better tomorrow. MBC robs many of us of that hope and without a fair share of the research and funding we only have today, but we also want tomorrow.
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